My endometriosis Diary Part V

Well what do you know…I’m in pain again. After an elaborate surgery I feel like it could be back again. In my last post I told you I was on a progesterone only pill (Endosis/dienogest), which supposedly stops your periods. But earlier this month I got them for a full week, heavily. My doctor’s visit in July after which she plans to take me off the pill, but I will not allow her to do it. I did skip a few pills here and there, which could be the cause of the pain and the period. So imagine if she took me off them completely - all hell would break loose.

My friend Sisi who is also a yoga teacher and was a nurse in the US has endometriosis. She keeps adjusting and altering her doses depending on how she feels. In fact, at this moment she is experimenting with a new treatment. Let’s see how that goes. If it goes well for her then I might give it a shot too.

Mind you I’m not in excruciating pain like before. Its just low, throbbing and consistent. If you have endo then you’d know exactly what I'm talking about. 

I was trying to research the disease, options and treatment and in India there are no real endometriosis specialists. There one in Kolkata Dr Pramathesh Das Mahapatra - if anyone has any experience with him please let me know. And another one in Mumbai - Dr Anshumala Shukla-Kulkarni, who is more of a laparoscopy specialist. 

I’m trying to think about why this supposed flareup is happening. I have started eating wheat and dairy and refined sugar - three very inflammatory foods. Perhaps cutting them out of my diet will help. I’m relatively healthy, I don’t really overdo anything ever. But maybe I need to be healthier. 

I plan to also visit a gastro specialist because most women with endo also have Crohn’s disease and IBS. So I need to find out if the pain in my lower back has anything to do with that. 

Unfortunately, I don’t have any inspiring ideas right now. If any of you have found any diet, exercise, medicine or doctor to help with this disease please let me know. I’m keeping my fingers crossed for tomorrow’s ultrasound and hopefully there’s nothing to be worried about. 

P.S: Didn’t know that yellow ribbon stood for endometriosis. 

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